Losing the Health Lottery

I know it has been a while since I uploaded. I was hoping to wait to make this post until I had all the answers to what is going on, but seeing as I don’t know when that will be, I figured I should go ahead and talk about it.

In February, I got really sick. I had a sore throat that became severe enough to send me into DKA (Diabetic Keto Acidosis for those who don’t know). While in the hospital I picked up a secondary infection and was bedridden at home with a horrendous cough for a month. Everything seemed alright until the end of June, when I was once again hospitalized for DKA as a result of a stomach virus. Now this was really unusual for me, as I only go into DKA once every few years, so twice in one year is something that raised some eyebrows.

While in the ICU the second time, the nurses asked if I had been told that my white blood cell count was low. When I replied that I hadn’t, they referred me to a hematologist to try and figure out what was going on. After an initial consult and blood tests, it was discovered that my neutrophil count was at a zero. I’m still not 100 percent sure what that meant, but the general idea was that my immune system had crashed, and that I was extremely susceptible to disease. Therefore, an emergency bone marrow biopsy was scheduled and I was put on quarantine in my house until my neutrophils were back to normal.

The bone marrow biopsy removed Leukemia and bone infection off the list of causes, which relieved us greatly. I went in for more blood tests, and they determined that I have something autoimmune going on. From what I understand, it could be positive because of the diabetes, or the thyroid condition I have, but it seems more likely it is something different.

As of right now, the biggest contenders are autoimmune chronic neutropenia or lupus (though I tested negative for lupus in all the blood tests that they ran, but I have symptoms that prevent them from ruling it out). We don’t know if this started in February, when the low white blood cell count was first noticed, or if it started sometime between 2012, when I last had my neutrophils tested, and now.

Unfortunately, we may not know anything until December, when my next round of doctor visits and tests will begin. Until then, I plan on trying to spend what time I’m required to stay at home working hard to bring you interviews and reviews and other posts in the coming weeks.

It has been a tough year, but I am Type 1 strong, and I will make it through this too.

2 thoughts on “Losing the Health Lottery

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